My name is John Snippe, and in January, 2011, I was diagnosed with Monoclonal iGg with Lamba light chains, and 10% increase in the marrow, tumours at vertebrae T9 and T12, and T12 is badly fractured.
For the next while I will be dedicating this website to an exploration of my experiences as I deal with the reality of Multiple Myeloma in my life. This site will, as currently thought about, deal with that reality in four different ways:
|My journal will record day-to- day events of dealing with this cancer in with my life. A blog/journal in the conventional sense: short, personal posts or observations. Links to various other places of interest. How I feel, how I am, how I think.
Not a lot of editing will happen here: what you see is what you get, with the most recent being ‘on top’ (reverse chronological order). Basically, the three below are more precise, more verbose, and more organized… but most of what ends up happening and being noticed will be written in the Journal first. Visit the Journal →
|Cancer is a medically-intensive disease: lots of tests and procedures. Lots of doctor visits. Lots of time in labs and hospitals, in strange machines, and with tubes and needles. Lots of drugs. Lots of money.
It can all get quite overwhelming and confusing. These pages will serve to outline what I have been experiencing as regards all the above. It will be divided into sections, but likely those will all sort of flow together… but I can hope for organization, can’t I? Visit the DocZone →
|One of the more interesting, and certainly more challenging, activities I have put myself to lately is trying to learn as much as I can about Multiple Myeloma and treatment options for it. There is a tremendous amount of stuff out there, for sure, but not all of it is very good. Indeed, some of it is quite bad. And, as a Cancer Survivor Trainee, I have to be quite careful what I read: this is a life-and-death thing for me, so I have a lot of me invested in what I learn… fear, depression, and anger are very much part of my day-to-day experience as I learn more about this disease.
My job in this section will be to come to a better, cleaner understanding of what it is I am learning about MM, and to catalogue that information in an easily accessible yet still accurate way (and hopefully I can beg some help from experts as I go… I haven’t asked yet, but intend to) Visit the Research pages →
|The spiritual aspect of this experience is one that has really quite surprised me… and it started doing so very early on in the process (literally within two days of first major symptoms, back in September.) Indeed, if it were not for the spiritual stuff going on all the time that I can observe, I’m pretty sure I’d be a full-on basketcase by this point.
Faith: it’s intangible, maybe, but it sure is real. It’s as real to me these days as the sensory world I deal with, and just as interesting, frankly. Visit Touched →